US & EUROPE – AXIAL SPONDYLOARTHRITIS PATIENTS

Five Cities in 10 Days: Recruiting AxSpA Patients for In-Person Interviews

Treatment can make a moderate-to-severe patient look mild.

A pharmaceutical company wanted to understand the physical, psychological and treatment needs of people living with axial spondyloarthritis (AxSpA), at home, at work and in public.

The brief called for 60-minute in-depth interviews across Chicago, New York, London, Paris and Berlin, over seven research days.

Key screening criteria:

·       Diagnosed with AxSpA at least six months ago

·       Currently managed by a rheumatologist

·       Moderate to severe at diagnosis

·       On prescription therapy, with about half on an advanced therapy

·       Aged 18 to 65

·       No significant comorbidities, such as cancer or serious mental health conditions

One quota addressed a specific problem. Patients who were moderate to severe at diagnosis may now appear mild because their treatment is working. To keep the focus on significant disease, no more than 40% of patients per interview day could currently be considered mild.

Soft quotas covered a mix of age, income and gender, with a target of roughly 60% men. They also sought at least three patients with inflammatory bowel disease linked to their AxSpA and at least five with uveitis.

Before their interview, patients completed a homework exercise, choosing images that showed how AxSpA had affected their lives. Moderators then built on these with scenario and good-day/bad-day exercises.

The design aimed to capture lived experience across markets, not just clinical history.

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